ABOUT ME
Hi, I’m Aimee! I balance dual careers as a program manager for a local nonprofit and realtor while navigating life with Ehlers Danlos Syndrome.
Balancing these busy roles while listening to my body made of flawed collagen takes flexibility, literally and figuratively. Here, I write about the reality of life with Ehlers Danlos, navigating careers and living the life I love around physical limits.
What is Ehlers Danlos Syndrome?
Ehlers-Danlos Syndrome (EDS)—a genetic condition that affects the body’s collagen, making joints, skin, and tissues overly flexible and fragile.
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Medical Disclaimer: Welcome to Not Your Textbook Patient! I am sharing my personal journey, daily management strategies, and lived experiences with Ehlers-Danlos Syndrome for informational and community-building purposes only. I am not a doctor, physical therapist, or medical professional. The content on this blog is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with your healthcare team before making changes to your medical care, exercises, or lifestyle routines.
