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Fascia, Pain & Exhaustion
Healthy Fascia This morning I stumbled upon a document talking about fascia and hEDS patients. It was quite an interesting read. This is an area is often overlooked by doctors when EDS patients talk about their pain. When a doctor does an x-ray, they’re only looking at the bones. An MRI, looking at the tendons…
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When the Bough Breaks
It’s been three weeks since my hirst round of Prolotherapy and one week since my second round. I still maintain that the first round provided 80% relief and almost 100% in my back. Now that I am three weeks into the injections, I wish I could say the same. My hip pain is anywhere from…
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Invisible
Living with Ehlers-Danlos Syndrome (EDS) often feels like balancing two distinct realities: the dynamic, complex symptoms happening inside my body, and the “you look totally fine” narrative projected by the outside world. What People Don’t See When They Look at EDS If you passed me in the grocery store today, you probably wouldn’t notice a…
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Learning My Limits
In August, I was put on a modified bedrest, not the best for a realtor but necessary. I needed to give my body a chance to rest and heal. At the same time, I also needed to learn what positions, movements and activities caused me the most pain. Thankfully, I was able to do my…
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One Week Later
It’s been one week since I received my first round of Prolotherapy injections. The process itself wasn’t as bad as the other injections I have had this year. Right after receiving the injections, I noticed an immediate difference in my back. The doctor had me stand up to see if I noticed any difference in…
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Complicated
There are 13 forms of EDS, all but one have genetic markers. The hypermobile version is the only one that is diagnosed with a single sheet of paper. This is often the one that most insurance companies don’t recognize as a condition. My genetic testing was recently denied by insurance because of the possible hypermobile…
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Cortisone, Prolotherapy, PRP or PRF. What’s the difference?
These past few months, there have been many injection options thrown at me. For the hip, it started with Cortisone. You can only do so many injections of Cortisone before it weakens the ligaments. Mine are already crappy to begin with, when I do opt for cortisone, I only do one to see if it…
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Surgery vs. Injections
This year has been overwhelming with doctor appointments. Some appointments have included injections in my hip and back. The cortisone in my hip provided 80% relief for one month. The first round of diagnostic injections in my back provided 50% relief for a few weeks. The next round of diagnostic injections in my back provided…
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Pain Medication VS Beer
Over the past year I have been been prescribed a wealth of pain medications, each causing different side affects that were fare worse than the pain. It started with Gabapentin. Days after taking it, I felt like an alien was about to burst out of my stomach late at night. Because the pain is so…
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Let Me, Be Me
I will be the first to admit, I am one to push through the pain. I have to get this or that done. I committed to going to this event and don’t want to let others down. There are times we should certainly wrap me up in bubble wrap, but please let me make that…
Ehlers Danlos Blog
Not Your Textbook Patient
