Tag: invisible illness
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Invisible
Living with Ehlers-Danlos Syndrome (EDS) often feels like balancing two distinct realities: the dynamic, complex symptoms happening inside my body, and the “you look totally fine” narrative projected by the outside world. What People Don’t See When They Look at EDS If you passed me in the grocery store today, you probably wouldn’t notice a…
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Complicated
There are 13 forms of EDS, all but one have genetic markers. The hypermobile version is the only one that is diagnosed with a single sheet of paper. This is often the one that most insurance companies don’t recognize as a condition. My genetic testing was recently denied by insurance because of the possible hypermobile…
